tag:blogger.com,1999:blog-6190258529969238606.comments2024-01-11T16:06:46.611-05:00Loving With Chronic IllnessMayahttp://www.blogger.com/profile/12464918027158800223noreply@blogger.comBlogger939125tag:blogger.com,1999:blog-6190258529969238606.post-40694236147006866602012-10-27T07:53:29.996-04:002012-10-27T07:53:29.996-04:00Very nice blog. Thanks!Very nice blog. Thanks!modern farming methodshttp://www.vlfarming.comnoreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-40706945978274673652012-10-27T02:08:47.592-04:002012-10-27T02:08:47.592-04:00Hey so sweet!! congrats jodi may god bless you...!...Hey so sweet!! congrats jodi may god bless you...!!Critical Illness Coverhttp://www.mycriticalillnesscover.co.uk/noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-80464166577430969052012-09-14T17:38:01.224-04:002012-09-14T17:38:01.224-04:00Hello there! This is my first comment here so I ju...Hello there! This is my first comment here so I just wanted to give a quick shout out and say I genuinely enjoy <br />reading your posts. Can you suggest any other blogs/websites/forums that go over the same subjects?<br /><br />Appreciate it!<br /><i>my webpage</i>: <b><a href="http://vietace.com" rel="nofollow">bdsm chat</a></b>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-88197459984444168492012-08-10T23:42:11.056-04:002012-08-10T23:42:11.056-04:00I love youI love youJohnhttps://www.blogger.com/profile/07638171909870797483noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-32914448546845555482012-08-10T22:49:47.650-04:002012-08-10T22:49:47.650-04:00I'm planning to do this in honor of my twin br...I'm planning to do this in honor of my twin brothers chronic illness when I turn 18! I'm not sure what to get just yet... He has chronic migraines and I want something that reminds me of our childhood or like our relationship.dancinonwaterhttps://www.blogger.com/profile/09952872139769929165noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-30864613760697388662012-07-19T16:55:42.219-04:002012-07-19T16:55:42.219-04:00This comment has been hidden from the blog.ArtSings1946https://www.blogger.com/profile/06334512350452471407noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-74906194032117001472012-06-30T15:23:11.659-04:002012-06-30T15:23:11.659-04:00Thank you so very much for this story. I too am c...Thank you so very much for this story. I too am caring for my husband of 35 years who is 80, pretty healthy but has a progressive vascular dementia. You have reminded me that I am very fortunate that he was such a good provider and that we always watched our pennies, so we can afford to have full-time professional caregivers. So many of the caregiver-spouses I know have virtually no financial resources--I can't imagine how they do it. Also in so many ways he is still so very much himself, for which I am also grateful.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-31141694984529846872012-05-20T12:26:48.175-04:002012-05-20T12:26:48.175-04:00Maya, I hope time is passing by and you are just t...Maya, I hope time is passing by and you are just too busy to post instead of being too sore, pain, and tired to post! Take care.Samanthahttps://www.blogger.com/profile/03473788832507028635noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-50452076828786301072012-04-22T01:42:24.455-04:002012-04-22T01:42:24.455-04:00I LOVE this! Congrats Jodi! Sweet pictures!I LOVE this! Congrats Jodi! Sweet pictures!Khttps://www.blogger.com/profile/15275723559034096638noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-89595425705935275732012-04-22T01:40:41.280-04:002012-04-22T01:40:41.280-04:00Sue, thank you for being so honest. This is not s...Sue, thank you for being so honest. This is not sugar coated in the least and it shows the true strength of what you were able to cope with as a couple. I am a physical therapist and will take your medical professional words to heart. :)Khttps://www.blogger.com/profile/15275723559034096638noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-63631232007264174382012-04-06T21:44:42.363-04:002012-04-06T21:44:42.363-04:00Your assessment of Dr. DeVito is spot on! She is ...Your assessment of Dr. DeVito is spot on! She is the most empathic, attentive, kind, human & giving professional of the oft-robotic ilk of NYC psychiatrists. You know that you are a person -- not a symptom to be (probably over-) medicated. She is of a rare breed of her profession: a psychiatrist that has the temperment & caring disposition of a psychotherapist. She is a profoundly remarkable paragon that her collegues should emulate.2MuchFatiguehttps://www.blogger.com/profile/09225768853217060346noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-72732666414702455622012-03-05T04:29:42.885-05:002012-03-05T04:29:42.885-05:00A weak immune system, hormonal changes and stress ...A weak immune system, hormonal changes and stress are some of the risk factors for scalp psoriasis. Flaking and constant itching can make the person feel very embarrassed. There are various treatment options for scalp psoriasis. Let's take a look at them. <br /><a title="psoriasis free for life" href="http://www.se-cure.com/psoriasis-free-for-life-review" rel="nofollow">psoriasis free for life</a>Anonymoushttps://www.blogger.com/profile/11141369533739287228noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-26610233955900687442012-02-20T01:28:26.105-05:002012-02-20T01:28:26.105-05:00Psoriasis comes from the Greek word psora, meaning...Psoriasis comes from the Greek word psora, meaning fine bran like scaling. Psoriasis afflicts 1% - 4% of the general population, and is a type of chronic skin condition where itchy scaly red or white flaky patches form on the scalp (in approximately 40% of cases), elbows, forearms, knees, groin, and legs or lower back.<br /><br /><a href="http://www.evitalhealth.com/Mag_Glycinate_240T.html" rel="nofollow">Mag Glycinate</a>kaneyhttps://www.blogger.com/profile/04767722783117979542noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-59012240363816869102012-02-17T13:40:23.530-05:002012-02-17T13:40:23.530-05:00Have you looked into Humira? It is a humanized ve...Have you looked into Humira? It is a humanized version of remicade.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-90157341675827959692012-01-17T15:35:08.020-05:002012-01-17T15:35:08.020-05:00Sue, thank you for sharing your story with us. I a...Sue, thank you for sharing your story with us. I am so moved by the pain of the experience and also your strength. Much love to you <3, from Kate.Katehttp://www.katealicecookbook.comnoreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-86635674654607003642012-01-15T17:26:09.135-05:002012-01-15T17:26:09.135-05:00I am a firm believer in that angels walk this eart...I am a firm believer in that angels walk this earth. She is one of them. Thank you for sharing your story. In part because it makes me realize even more that I need to keep myself socially in touch with the world at large and also to be more sensitive in how my chronic illness impacts my family. I am sure that at some point I will need more and more help as time goes by but by sharing this story it makes me realize that I can also help by planning more and being more willing to accept that I will need assistive devices if I want to continue to be mobile. I can tell how much the support groups really helped and I just wish that there were more of them available. It seems that social networking has taken over alot of the groups for people living with chronic illness. Again, thank you for sharing your touching story.Deb aka AbcsOfrahttps://www.blogger.com/profile/12619087592028571941noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-12643545653299760682012-01-10T11:24:55.724-05:002012-01-10T11:24:55.724-05:00I just started Aquatic Physical Therapy Yesterday!...I just started Aquatic Physical Therapy Yesterday!!! It is amazing, to be grateful for something as simple as exercise! I didn't hurt, my muscles had that joyous fatigue that only exercise can bring!<br />For those who have no idea what it is like to be sick, they cannot possibly fathom the joy we feel when those minute details return to our lives!<br /><br />Good Luck!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-61564512689475502772012-01-10T10:21:45.534-05:002012-01-10T10:21:45.534-05:00Thank you so much for your comment and for looking...Thank you so much for your comment and for looking out for me :) You're absolutely right - I should be careful about my limits. I met with this trainer a couple of weeks ago and asked him about his experience with joint conditions. He seems to be quite knowledgeable about them and has worked with many chronically ill individuals of all ages. It seems like he will really listen and ensure my safety.Mayahttps://www.blogger.com/profile/12464918027158800223noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-84829885450057218242012-01-10T10:15:39.383-05:002012-01-10T10:15:39.383-05:00Good luck on the new training! If for any reason t...Good luck on the new training! If for any reason the gym's trainer doesn't work out, you may want to consult with a physical therapist. They understand the limits on joints, etc. that some trainers do not. Hopefully this trainer has been trained to train people with chronic illness. In any case, you know you own limits and I am sure you will do just fine!Deb aka AbcsOfrahttps://www.blogger.com/profile/12619087592028571941noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-44618077091966567992012-01-05T17:40:07.020-05:002012-01-05T17:40:07.020-05:00Hi Maya - you have so much to be proud of! And the...Hi Maya - you have so much to be proud of! And the most beautiful person you could turn out to be in life is YOU! Purely and simply YOU. I am 46 years old - have Lupus, Sjogren's, RA and SA - a nice autoimmune resume! I went from 30+ years of running (mostly marathons later in life) and a wonderful career in social services, working full-time, raising seven daughters and enjoying many, many hobbies (painting, canoeing, climbing)...to being completely disabled in 2009. But let me tell you my dear, it's in losing these parts of my life that I have gained the greatest gift of all - ME. Would I really like to be well again...YOU BET!! Would I give up who I have become and the happiness and peace that fills my every day - NO WAY! <br />I had a discussion the other day with someone who posted that if we don't have our health, we have nothing. Oh my goodness... did I jump on that one!! What a sad statement for all the millions of people that suffer every day. We may not have perfect bodies, and we may have a lot of pain - but what we choose to think is ours! And we can always choose joy - always. <br />Blessings to you on this amazing journey. Be well, and be compassionate with yourself. <br />Peace,<br />Theresa <br />OneMomentOneLife.orgTheresahttps://www.blogger.com/profile/01912721091517376990noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-3335037829116469222012-01-05T14:03:56.101-05:002012-01-05T14:03:56.101-05:00It really doesn’t matter how old you are. Setbacks...It really doesn’t matter how old you are. Setbacks are setbacks. It would be nice that if we didn’t have to be so heavily apart of the medical community but that is not our reality. You are going into a career that will withstand your setbacks. I left the legal field and went to work for a realty company because the stress had its effects on my health. I am a lot less stressed than I was in the past and it has been a difference in keeping my RA and fibro symptoms at bay. You are absolutely correct in that you can’t lose sight of your dreams. My dreams changed when RA and fibro came into my life. If not for my failing health, I would be done with law school by now but that didn’t happen. My diagnoses forced me to rethink my priorities and that I did. Know that if things change, accepting it and moving forward from it is your best defense. Keep standing tall, Maya. You will get there and you will find strength you never thought you had.Lanahttps://livinglifewithraandfms.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-19802348966889700212012-01-03T21:13:26.548-05:002012-01-03T21:13:26.548-05:00awww, thanks, maya!! xo
come to brooklyn soon to ...awww, thanks, maya!! xo<br /><br />come to brooklyn soon to meet olivia, m'kay?jodihttps://www.blogger.com/profile/14934446970840066767noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-62803339722897476942012-01-03T16:04:15.162-05:002012-01-03T16:04:15.162-05:00Thanks for all the sweet wishes and your understan...Thanks for all the sweet wishes and your understanding - that's why you are the best readers in the world. Happy New Year (and much love) to each one of you <3Mayahttps://www.blogger.com/profile/12464918027158800223noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-47727672419124104492012-01-01T23:54:04.749-05:002012-01-01T23:54:04.749-05:00Congratulations on your great success and new care...Congratulations on your great success and new career! It's a huge accomplishment and totally understandable that it keeps you VERY busy.<br /><br />Wishing you a happy and healthy 20121Lemon-Aidhttps://www.blogger.com/profile/08823677168311655083noreply@blogger.comtag:blogger.com,1999:blog-6190258529969238606.post-37926445415431325902012-01-01T10:25:26.808-05:002012-01-01T10:25:26.808-05:00Happy New Year Maya. Much good health and happines...Happy New Year Maya. Much good health and happiness to you in the New Year. Good luck on your ventures.Lanahttp://livinglifewithraandfms.wordpress.com/noreply@blogger.com