Showing posts with label Doctors of Note. Show all posts
Showing posts with label Doctors of Note. Show all posts

Monday, April 4, 2011

Dating, Love, And Chronic Illness: An Interview With Dr. Saltz (Famous Psychiatrist & Relationship Expert)

Recently I had the pleasure of interviewing Dr. Gail Saltz, M.D. about a very important issue that affects more than 100 million individuals in the United States suffering from various chronic illnesses: dating and maintaining satisfying intimate relationships while living with illness.

Dr. Saltz is a renowned psychoanalyst, columnist, bestselling author, and television commentator who Tom Brokaw has regarded as "a voice of wisdom and insight in a world of confusion and contradictions." You might recognize Dr. Saltz from any of her repeated appearances on The Oprah Winfrey Show, ABC’s The View, Dateline, ABC’s 20/20 and Primetime, Fox New's Bill O’Reilly and Glen Beck, CNN’s Larry King Live and Anderson Cooper 360, HLN’s Jane Velez-Mitchell and Joy Behar, among others. She has also been featured or quoted in the Associated Press, NewsweekO MagazineParadeRedbookWoman’s WorldTown & CountryNew York MagazineThe New York TimesThe New York Daily NewsThe New York PostThe Los Angeles Times, and WebMD. 


Dr. Saltz also hosts a series entitled "Strength of Mind" at the famed 92nd Street Y where she interviews celebrities and extraordinary individuals about psychologically interesting issues. To date, she has spoken with such luminaries as Woody Allen, Tom Brokaw, Katie Couric, Jane Pauley, Howie Mandell and Rosie O'Donnell, among others. She is an Associate Professor of Psychiatry at The New York Presbyterian Hospital Weill-Cornell School of Medicine, a psychoanalyst with The New York Psychoanalytic Institute and manages a private practice on the Upper East Side of Manhattan. I mentioned before that Dr. Saltz is a best-selling author, so be sure to check out all of her fascinating books and articles on a wide variety of issues (including a weekly column on MSNBC.com addressing questions about all kinds of relationships).

As Dr. Saltz worked toward her degree in Psychiatry, she did her residency in Internal Medicine and Psychiatry at Cornell-Weill School of Medicine and The New York Presbyterian Hospital. She explained, "I became particularly interested in the impact that illness had on the mind" and went on to do a fellowship in treating sexual dysfunction - a topic that she says was rather taboo at the time. Since illness has such a broad impact on an individual's life, medical and mental health professionals tend to just focus on the disease itself rather than the impact it could have on a person's sexuality and intimate relationships. Dr. Saltz explained, "The topic always ends up at the bottom of the priority list. How illness impacts sex was very important to me and I began doing a lot of couples work as well as individual work...there are many people who don't currently have a partner who still need to feel good about themselves as a sexual being."

Between keeping appointments with doctors, filling prescriptions, sticking to a medical regimen, and getting enough rest, coping with illness can feel like a full-time career. Add in work, school, volunteering, or maintaining relationships with family and friends, and it's hard to see an open space for dating. And then once you're on the date, a plethora of new concerns arise: When and how is the right time to bring up my illness? How can I make the other person feel comfortable? In the midst of falling for someone, how can I still do what's right for my body (i.e. ending the night earlier)? Dr. Saltz said, "In the dating world, it's really about when you choose to discuss the topic of illness. It's important to be thoughtful about when might be the best time; not disclosing this part of yourself too early or waiting too long." She also emphasized the importance of communication, even in these early stages. Since it's easy for people to take things personally (especially in the beginning), we shouldn't be insecure about explaining the real reason we may need to call it an early night. After all, if that person doesn't care to listen, then you've dodged a bullet anyway.

Just as with any stressor, Dr. Saltz says that the key to a functioning, long-term relationship in the face of chronic illness is good communication. She explained, "If a couple is able to communicate about and cope with illness, it's really a testament to the overall skills of that couple." We also discussed the anxiety surrounding chronic illness. Dr. Saltz explained, "Often when you're anxious about your illness, you tend to project that on to your partner...since you have the experience of being uncomfortable, you believe your partner will be uncomfortable too. Of course, you haven't asked them. The only way to know is to ask. It is equally important that both partners are able to be open about his/her feelings and concerns, so Dr. Saltz suggests a way that the sick partner may choose to invite honesty from their significant other. One might simply ask: "I'm thinking I'd like to talk to you more about something, but how do YOU feel?" She went on to say, "For the caretaker, it's often very difficult to say anything about their needs...they can feel so overwhelmingly guilty, not entitled, and concerned about keeping the focus on the patient. However, both partners need to give and receive; getting to stand in both shoes is important."

Of course, chronic illness can strike both males and females, and each gender must cope with certain insecurities about their health. Dr. Saltz reminds us, "people tend to underestimate how insecure men can feel. They can be just as insecure about how their bodies look and perform as women can be. Physically speaking, men have added pressure. If they're anxious about the sex act it will effect their erection and then they may start to avoid intimacy altogether." There is also the added factor of societal pressures. Dr. Saltz continues, "Admitting when there is pain can be very difficult and is seen as a factor of masculinity. Today's 30 something’s might have an easier time being open than today's 60 something’s because our society is becoming more open, but still there is the very real concept that real men don't complain and can tolerate pain. Men often don't want to go to the doctor and this can also be a real struggle for a couple."

As our conversation continued, Dr. Saltz added, "if you look at the 'happiness data', giving back is a big piece of satisfaction and both partners need to experience this. If one has the feeling that they're constantly on the receiving end it can make them feel useless. When people feel let in and listened to, they feel trusted and more trusting - those things lead to intimacy and don't require joint movement; they're really about communicating." I asked her about some typical romance issues experienced by couples coping with chronic illness to which she responded, "the nuts and bolts of having a sex life while living with chronic pain should be discussed. These changes can be scary, but again, it's about communication. What is okay for each partner to ask? What changes would embarrass me? Am I going to be less desirable or attractive to my partner now?" She continued, "Without talking about it, things tend to go poorly." She maintains that "each partner must be flexible about the definition of sex and open to different forms of stimulation and other sexual acts that don't necessarily involve intercourse. They may need to change the time of day and accept being less spontaneous. Maybe they could plan a candlelight breakfast if the mornings are better. It's all about remaining open to the possibilities. If you want to be successful as a couple don't just give up or let the issue go. It's important not to let [chronic illness] end your sex life because then you may lose the relationship." She added, "illness or not, when it comes to long-term relationships, change really is your friend."

We also discussed Dr. Saltz's involvement in New Way RA® (www.newwayra.com), a fantastic, one-of-a kind online talk show hosted by Deborah Norville and intended for people living with Rheumatoid Arthritis. It provides support and information for patients in a new and exciting way, and seeks to help people live well despite the challenges posed by their disease. The show enables viewers to "learn how to best manage their RA with advice from a leading rheumatologist, watch RA videos featuring people living with RA who share their experiences and inspiring stories, and understand the importance of feeling your best, both physically and emotionally." They've rounded up a series of well-known experts in their respective fields to ensure that the highest quality information is being delivered.  From relationship advice to valuable nutritional information to arthritis-friendly fashion, New Way RA® truly deals with the patient as a whole. In my opinion, the beauty of this program is that it provides convenient, useful, and free information that is pertinent for anyone living with chronic illness (and not just RA). Dr. Saltz is excited about participating in this initiative and said, "as much as I love the one-on-one work that I do in my office, I also love public education. It's great to be able to reach all kinds of people."

I want to thank Dr. Saltz for taking the time out of her busy schedule to speak with me. More importantly, thank you for all the important work you're doing to better the lives of people who are living with chronic illness and for all of those who love them.

Here are some websites associated with Dr. Saltz that may be of further interest: 



Thursday, September 30, 2010

My Continuous Battle With Tiger Girl!




Hello my wonderful readers,


First of all, I cracked up when I saw there was an actual comic book character named "Tiger Girl" since that's what I've been calling myself for the past 3 weeks! I am, of course, referring to the sexy, pesky and painful tiger-stripe rash all over my body that I first wrote about here. The rash is a severe allergic reaction to the IV Remicade that I received on September 11, but who woulda thought I'd still be popping Benadryl like it's candy?


The reaction also started giving me nosebleeds, severe fatigue, and weird bruising, so my rheumatologist referred me to Dr. Bernard Feigenbaum - an allergist in New York City. I've never had to see an allergist before, but to be honest, I was kind of digging the whole profession. The doctor and his nurse sat down with me and took down a detailed narrative of my past month. It kind of felt like being transported into a mystery novel: "Where were you on the night of September the 14th?" "Who were you with....when did these mysterious stripes first appear?" I'm sure it was slightly less exciting than all of that, but hey -  a girl's gotta cope!


In all seriousness, though, I'd recommend that doc to anyone and it's no surprise the referral came from Dr. Jessica Berman, my rock star rheumatologist. Ever since I met her, the quality of my medical care has skyrocketed and I feel a genuine sense of security amidst this recent chaos. That says a lot. After the appointment with Dr. Feigenbaum (brace yourself), he called a few days later "just to check up." We confirmed that the outbreaks were, in fact, from the Remicade and that unfortunately I can't even conceive of introducing a new medication into my system until this junk is out of my system. It could take a few more days or it could take months, so that's the rough part. My awesome insurance company also wont approve another medication until the end of October, so I guess I was in no rush anyway. Sigh...the red tape & daily realities of a sick chick.


In the meantime, Dr. Berman is in touch an impressive amount, reassuring me that we'll get this under control. I'm also still on prednisone - a steroid that helps my pain tremendously, but also gives me the following SWEET side effects:


1) A face that resembles that of a chipmunk more and more every day :( 
2) Inordinate amounts of sweating (thanks for putting up with me John)
3) A general sense that I'm about to jump out of my own skin...no big deal
4) Insomnia (at least I'm all caught up on my TV shows)
5) Foolish amounts of gas (again, thanks for loving me anyway John)
6) Constant thirst ( I think my apartment building is experiencing a water shortage because of me)
7) An appetite that can only be described as akin to Garfield







To be honest, the tone of this post sort of mirrors a general shift in my outlook lately - a kind of "going with the flow because what the heck else can I do?" feeling. I've got to laugh about all of this or I'll lose it. It's actually been pretty fascinating to see the coping mechanisms that our minds are capable of utilizing when our bodies couldn't be more unpredictable. I'll write more about that later, but for now - thanks for reading!

Love,
Maya

Tuesday, April 13, 2010

Winning Doctors

There's no denying that my family, friends and I have been to our fair share of doctors - the good, the bad and most who fall somewhere in between. But there are also docs that have gone above and beyond and, since my ultimate goal here is to help others living with illness, why not pass along some gems I've found? They're all in New York State - I hope this helps!



Gastroenterology:

Dr. Kevin Tack, MD, Long Island
I'm going to go ahead and say this is is the best doctor I've encountered. Not only is Dr. Tack very kind, but you can really tell how much he cares about his patients. He starts every appointment exactly on time, he is thorough and always calls you back. If I haven't sold you - it takes a good doctor to make the detailed discussion of GI issues bearable, and he does :)
Contact:
Manhasset Medical Associates
1516 Northern Boulevard
Manhasset, NY 11030-3006
(516) 627-3717

Rheumatology:

Dr. Thomas J. Lehman, MD Upper East Side Manhattan
as I've mentioned in earlier posts, Dr. Lehman is my pediatric rheumatologist. He's been in my life for 8 years now and was the one to diagnose my Spondylitis when everyone else was stumped. He's top in the field and literally wrote the book on Spondyloarthropathies and other related diseases: "It's Not Just Growing Pains." He caught my illness before it got really out of control, so for this I'm forever grateful to him.
Contact:
Hospital For Special Surgery
535 East 70th Street
New York, NY 10021-4823
(212) 606-1151




Internal Medicine

Dr. Bernard Schayes, Upper East Side, Manhattan
I've only recently started seeing Dr. Schayes, but already I like what I see. Not only are the receptionists and staff in his practice friendly and accommodating, but Dr. Schayes himself is very kind and seems to really listen. I just feel at ease under his care, and in this day and age that goes a long way...
Contact:
162 East 80th Street
New York, NY, 10075
Phone Number: (212) 535-3338

Cardiology:
Dr. George Petrossian, MD, Long Island
Luckily, I've never had to see Dr. Petrossian personally, but he has taken such good of my family (my wonderful grandmother in particular) that he has to be on this list. He is also the father of a high school friend, so I know he's just a great person. If I or anyone I loved had a heart issue, Dr. Petrossian would be my first call.
Contact:
New York Cardiology Group
1405 Old Northern Boulevard
Roslyn, NY, 11576
Phone Number: (516) 484-6777


Pulmonology:

Dr. Robert Schreiber, Long Island
Contact:
Nassau Chest Physicians PC
Dr. Schreiber has seen and helped a number of my family members. He is an extremely intelligent, talented and empathetic doctor and I'd recommend him to anyone!
233 East Shore Road Suite 112
Great Neck, NY, 11023
Phone Number: (516) 482-7810

Obstetrics & Gynecology:

Dr. Anita Sadatay,MD, Long Island
I've never actually seen her myself, but my mom swears by her. She says she's the best - friendly, available and just a solid professional.
Contact:
900 Northern Boulevard
Great Neck, NY‎
(516) 466-0778‎

Podiatry/Podiatric Surgery:

Dr. Simon Young, Upper East Side of Manhattan
So I hate to stereotype here, but the Podiatrists I've been to are generally...well...foot people (not so much people people). Dr. Young actually knew about Spondylitis and the high risk of infection that come with taking Humira shots. He was extremely thorough, clear and gentle. Also, if you're looking for the least painful foot injection possible, this is your guy.
Contact:
110 W 96th St
NY,NY 10025
Phone: 212-316-7000

Dentistry:


Dr. John Cottone, Long Island
Going to the dentist gets less and less fun the older you get, but I can honestly say Dr. Cottone makes the experience as pleasant as possible (and that's saying a lot). He couldn't be nicer and really cares about his patients - not just their pearly whites!
Contact:
Berry Hill Dentistry
26 Berry Hill Road
Syosset, NY 11791
Phone: (516) 921-1717



I'll be adding to this list as time goes on and hope you'll all send your suggestions my way. I have a few appointments lined up with new doctors (They say I'm an adult now, so I guess I have to go to adult doctors)
. Stay tuned

Monday, March 15, 2010

The Beginning

Welcome to my blog about living and loving with chronic illness. Truth be told, I've thought of myself as many things, but a blogger was never in the cards. I think three elements have brought me here:
1) A huge passion for the written word (reading it, listening to it, creating it)
2) A lifelong story, resources and a little wisdom I've collected that I think may be worthwhile to share
3) A strong desire to connect with others who might be drawn here.

By sharing my story and experiences, my hope is to highlight the ways I've found that good can come into our lives (often because of and not despite of illness). Certainly this looks different for all of us and it might take a while to see or understand how it's even possible. Even when we figure it out, it's also easy to lose sight of (especially on "bad days"). It's a struggle - for all of us - but I really believe the good is there waiting and we have to open our hearts to it. Whether good comes in the form of a real friend who we find content to just sit with us through a doctor's appointment, a career path that might be revealed, or any number of surprising ways... it's up to us to search. It's easy to sometimes feel our illness is the bane of our existence, but what if it's only what we make it? What if, when looked at in the right way, our greatest struggles could also be our great strengths? I hope somewhere in my posts, I show this to be possible.

The disease I live with is called Undifferentiated Spondyloarthropathy (really rolls off the tongue, I know!). Say it correctly five times fast and you'll be my hero. Spondyloarthropathy (also known as "Spondylitis") is a fairly rare form of arthritis that causes inflammation, stiffness and pain in every joint and connective tissue in the body. Because of the chronic pain, I'm also chronically exhausted. If you care to read more about Spondyloarthropathy and other relates diseases, give the Spondylitis website a glance:

Now that I've defined it, let's back up a bit to the beginning. I was a happy, curly-haired munchkin for most of my childhood and, in all the ways that counted, I really had it made. In fact, I still do. I had a mom, dad, brother and extended family that would go to the ends of the earth for me. I lived with a beautiful roof over my head, a big backyard and a safe neighborhood to grow in, pets to love, a private school education, summer camps, food 3 times a day. Undoubtedly my health was my biggest obstacle. Whether I wanted to admit to or not, 16 years of pain, medical appointments, exploratory tests and stumped doctors took a toll on me. You can only hear doctors imply that you're making things up so many times before you start believing it yourself. For years I convinced myself that the pain was normal...that everyone woke up unable to walk.

Of course in my heart I knew I was different and, since the average grade-schooler spends most of their day trying NOT to stick out, it wasn't easy. According to my parents, I rarely complained or missed school, but each day was just harder for me than the average kid. It was the simple stuff, really... sitting in car rides, bus rides or classes for more than 20 minutes made my back throb and burn with pain. I wouldn't be able to keep up with my classmates while walking in lines (hasn't really changed today), and then kids being kids, asking why I was "so slow". Although gym class as an institution is, in my opinion, inherently brutal for most kids (could go on for pages about my gripes with it), it was especially rough with an undiagnosed illness. I just couldn't do most of what was required: the stretches, the pull-ups, the timed miles. Year after year, I had gym teachers calling me lazy or making examples of me. Once, I had to run a mile alone in front of my class on painful ankles because my teacher decided I was "faking it". Given no other options, I still tried to suck it up; convince myself it wasn't that bad.

A chain of events led to my eventual diagnosis, beginning with Mr. Mack (my third grade math teacher and full-time dreamboat... but I digress...). Let's make no bones about this: I'm pretty awful at math, but in third grade I was especially awful. It wasn't for lack of trying; my mind was just...fuzzy. Being in pain and just becoming forgetful - it wasn't me- and luckily, Mr. Mack cared enough to pick up on it. He spoke with my parents about his concerns who then took me to more doctors. Because of the intense joint pain and because I had recently spent some time on Fire Island (a heavily wooded island off the coast of Long Island), all signs pointed to Lyme Disease. I never saw a tick on my body and didn't present with the common rosy patch one typically gets with Lyme, but doctors decided to treat me for it and see if that helped. I was hospitalized for a few days and, after being discharged, wore an IV port to school so I could receive antibiotic infusions for about a month. The pain and symptoms seemed to dissipate and so doctors thought they'd finally figured it out.

Unfortunately, it didn't last. In late middle school and early high school, the pain resurfaced and it was only then that I was referred to Dr. Thomas Lehman. I was told Dr. Lehman was the top in the field of Pediatric Rheumatology, but Rheumatology? Arthritis? It seemed impossible. I was 16 and could only think: "isn't arthritis a disease for the old?" Dr. Lehman did some blood work and sure enough - I tested positive for having the HLA-B27 gene (a strong predictor of Spondyloarthropathy and other autoimmune disorders). This is why I always say that getting diagnosed was mainly just a huge relief. Finally someone not only believed me, but they knew how to help !

I'll get into some more details later, but 8 years later this is why I'm here. I've had many medical experiences, but more importantly I've had many personal one. It hasn't always been a smooth road, but everything (the friendships, the relationships, the good, the bad and the downright ugly) has helped shape me. It's all made me see that in some very unexpected ways, Spondylitis has made me Maya. That's not to say it defines me, but it's okay to admit it's played a pretty major role in my life. In my eyes, it's made me stronger. I feel lucky to share my story and resources with you as it unfolds and to hopefully keep you company on your own journey. Thanks so much for reading...