"To be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live life to the fullest."
I can't say it enough. I'm so profoundly grateful for The Spondylitis Association of America (SAA), an organization that I wrote about in my May 7th post Spondylitis Awareness & How To Help. The organization is filled with caring people, working tirelessly to fund research, support Spondylitis sufferers like myself and the people who love them, and bring vital awareness to the public.
Far too many times, Spondylitis goes undiagnosed simply because it's not on the public radar. Those who haven't been handed the diagnosis by a skilled professional don't know what to look for don't know what the ramifications of the untreated disease can be. While there is not yet a cure, we are lucky enough to live in a time of fantastic modern medicine. If diagnosed early enough, Spondylitis sufferers can avoid dramatic and permanent damage to their joints like I've managed to do thus far. SAA recognizes this as a great opportunity.
Recently, SAA has begun a campaign aimed at spreading awareness and reaching thousands of undiagnosed sufferers (on 400+ Television stations and even here in the middle of Times Square!) Please Click here to read the press release and view the video about this awesome initiative. So have you had back pain for more than 3 months? A central element of this campaign is this newly released, comprehensive, and free questionnaire developed by physicians to help uncover undiagnosed cases of Spondylitis. It's simple and no personal information is required or collected.
Just a little plug here... please don't forget SAA relies heavily on funding to advance research and work towards a cure for Spondylitis and related auto-immune diseases. Consider donating here to SAA or check out their shop which sells anything from informative books to "Stand Tall" bracelets - inevitable conversation-starters and a great way to spread awareness!