The two beauties above are Sara and Laura Ferrarone, my boyfriend's sisters and two women I couldn't love more. They both live with a progressive and life-threatening disease called Friedreich's Ataxia (FA). This is the exciting part: it seems a cure (and our family's miracle) could be on the horizon! Margaret Ferrarone (John, Sara, and Laura's amazing mom and my "other mama") is participating in Ride Ataxia Philadelphia, a long bike ride this October to raise money for FA research. We could use your support - even five dollars means a lot. Please read Margaret's recent letter to family and friends and learn a bit more about this incredible family...
Laura, John & Sara
On September 26, Sara and I are travelling to Philadelphia to the Children’s Hospital to begin a drug trial that will last a couple of months with 5 separate trips to Philly. This is one of several studies that are underway or will be underway in the months to come. Both Sara and Laura will participate in another study here in Rochester next Spring. Finally, a little hope has arrived at our door. Our years of fund raising and contributing have meant something.
On October 10, I am going back to Philadelphia for the Ride Ataxia bicycle ride. I am no bike rider and in fact just borrowed a bike this summer to start riding and to gain the confidence to ride in an event such as this. I am slow and steady! I will set no records and in fact I just hope I won’t keel over after the many hill climbs outside Philly. It may be more of a walk with my bike by my side! However, my purpose is not a bike ride, it is to focus on the treasures of my life while helping fund the research.
The Wonderful Ferrarones and me, Italy 2010
Thanks for reading! I hope you'll consider sponsoring Margaret in this great endeavor and adding to our family's hope. It would mean the world.