Many people have been asking how my first Remicade infusion went yesterday and that means a lot. It went as well as a 4 hour IV infusion in New Jersey could have gone! ;)
|It being September 11th yesterday, we drove under this flag |
on the George Washington Bridge (it was much bigger
and more striking than it looks). It gave me courage.
Aside from the 2 hour trek to Jersey - some silly insurance hoop - I had the company of my mama as usual (thanks again, mom!), the center was comfortable, and the nurse couldn't have been nicer. He got the IV in on one stick (a rare event for me) and, in stead of feeling anxious, I mostly just felt hopeful. As my friend Cathy updates us on her success with Enbrel , I've found myself growing increasingly hopeful about the quality of life Remicade might afford me. This may be over the top and cheesy, but it felt like there were possibilities dripping into my arm instead of just medication. As I watched the bag emptying above my head, I imagined the city blocks I might be able travel, the floors I'll sit on without becoming stiff, the ball games I'd play with my dogs, the long walks through Central Park, the energy I'll have for family, friends and of course for John. I sensed potential yesterday and, while I'm trying not to build my hopes too high, I've got to believe in my doctor. I've got to believe in my body.
|Maybe it's just the dork in me,|
but this made me laugh
Thanks for reading and for caring about my story. You all give me great strength.